Heston is a 7 year old boy suffering from Shwachman Diamond Syndrome.
Shwachman-Diamond syndrome (SDS) is a rare genetic condition that affects a child’s bone marrow, pancreas and bones. Sometimes it involves other parts of the body.
Children with SDS can develop bone marrow failure. This means the soft center of bones does not make enough blood cells to stay healthy. If SDS affects your child’s pancreas, they may not get enough nutrients from food. This affects their growth. Many children with SDS also have problems with how their bones develop. In addition, the condition may increase the risk of blood cancer.
Heston is currently on a feeding tube 24/7 and has started the process of Bone Marrow Failure. An active search of a Bone Marrow Donor for him is in full motion at this time.
A golf tournament is being held to help Heston. The tournament will be held:
Saturday November 18, 2017 | Tee Time: 12 Noon
Ocala Golf Club
3130 E Silver Springs Blvd.
Ocala, FL 34470
There is a need for sponsors, prizes, swag for the bags, volunteers for the day of the event, and of course GOLFERS!!! CCL Designs is a proud sponsor of the Benefit Golf Tournament for Heston. If you are interested in being a sponsor, donating a prize, contributing swag for the bags, volunteering, or golfing – please contact CCL Designs. If you’d like to donate, please also let us know.
Please Help Heston.
I went to high school with Heston’s mom. Their family has faced many medical battles and I have never seen a stronger family unit. Mom, Heston and Heston’s older brother have all faced life threatening illnesses. Sadly, Heston and his mom are still fighting. Dad is there every step of the way for his family. I’ve never met braver people in all my days. Please keep them in your prayers.
Heston is MY superhero.
~Heather, CCL Designs